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  Impact of Cerebral Palsy on the Family

 
Cerebral palsy is one of the most common causes of childhood disability. Between five and eight percent of infants weighing less than three pounds at birth develop cerebral palsy.

Every parent strives to help their children reach their emotional, mental and physical potential. The difficulties associated with cerebral palsy add additional challenges. Like any child, those affected with cerebral palsy are most fulfilled and productive when they live, work and study along side with their peers.

Children with cerebral palsy can usually do most of the things a non-disabled child can, just with more difficulty. One of the most difficult challenges a cerebral palsy child faces is the knowledge that others see them as different. Depression and isolation, real or self imposed, can be one of the biggest obstacles for a child with cerebral palsy.

In addition, children with cerebral palsy will encounter substantial challenges throughout their lives. All but the most affected children will have the potential to create a satisfying life experience for themselves. Learning, playing, making friends and participating in family life create a support network of people eager to see the cerebral palsy child succeed.

About ninety percent of parents report that learning to manage their child's disabilities has increased their own self-esteem and that the family has grown closer together. Also, parents often discuss their problems together and relatives have been helpful and understanding. On the other hand, sixty-five percent report living on a "roller coaster" and forty percent report having no time left to care for the rest of the family. Over forty percent report family sacrifice and parent fatigue as common problems. And forty-five percent have considered having no more children.

Further, the effect of cerebral palsy on a family centers on time issues. The roller coaster effect of dealing with the ups and downs of cerebral palsy can be emotional exhausting and leave little time or patience to deal with other important family issues. Also, many people with cerebral palsy need long term services or care. It is estimated that the lifetime cost for all people with cerebral palsy who were born in 2000 will total $11.5 billion. These costs include both direct and indirect costs. These estimates do not include other expenses. The actual economic costs of cerebral palsy are, therefore, higher than what is reported.

With proper management, the impact of cerebral palsy on children can be moderated. Parents should work with heath care professionals to minimize how cerebral palsy affects their child, mentally and physically. Love and care lessen the impact of cerebral palsy on a child's life. With planning and dedication, parents can help cerebral palsy children realize their inherent potential while living a satisfying and happy life.
   
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