Cerebral palsy is one of the most common causes of childhood
disability. Between five and eight percent of infants weighing less
than three pounds at birth develop cerebral palsy.
Every parent
strives to help their children reach their emotional, mental and
physical potential. The difficulties associated with cerebral palsy add
additional challenges. Like any child, those affected with cerebral
palsy are most fulfilled and productive when they live, work and study
along side with their peers.
Children with cerebral palsy can
usually do most of the things a non-disabled child can, just with more
difficulty. One of the most difficult challenges a cerebral palsy child
faces is the knowledge that others see them as different. Depression
and isolation, real or self imposed, can be one of the biggest
obstacles for a child with cerebral palsy.
In addition,
children with cerebral palsy will encounter substantial challenges
throughout their lives. All but the most affected children will have
the potential to create a satisfying life experience for themselves.
Learning, playing, making friends and participating in family life
create a support network of people eager to see the cerebral palsy
child succeed.
About ninety percent of parents report that
learning to manage their child's disabilities has increased their own
self-esteem and that the family has grown closer together. Also,
parents often discuss their problems together and relatives have been
helpful and understanding. On the other hand, sixty-five percent report
living on a "roller coaster" and forty percent report having no time
left to care for the rest of the family. Over forty percent report
family sacrifice and parent fatigue as common problems. And forty-five
percent have considered having no more children.
Further, the
effect of cerebral palsy on a family centers on time issues. The roller
coaster effect of dealing with the ups and downs of cerebral palsy can
be emotional exhausting and leave little time or patience to deal with
other important family issues. Also, many people with cerebral palsy
need long term services or care. It is estimated that the lifetime cost
for all people with cerebral palsy who were born in 2000 will total
$11.5 billion. These costs include both direct and indirect costs.
These estimates do not include other expenses. The actual economic
costs of cerebral palsy are, therefore, higher than what is reported.
With proper management, the impact of cerebral palsy on children can be
moderated. Parents should work with heath care professionals to
minimize how cerebral palsy affects their child, mentally and
physically. Love and care lessen the impact of cerebral palsy on a
child's life. With planning and dedication, parents can help cerebral
palsy children realize their inherent potential while living a
satisfying and happy life.